May 21, 2019
Smartphone App Can Help Diagnose Huntington’s Disease
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December 12, 2018
Georgia Ehlers-Danlos Syndrome Network Partners with Backpack Health to Provide Health Management Tool
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November 16, 2018
How One Rare Disease Organization Used Technology to Provide Greater Patient Insight to FDA
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November 2, 2018
GW Pharma’s Cannabidiol Therapy Now Available for Rare Childhood Onset Epilepsy
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September 10, 2018
Patient System to Help Diagnose People in European with Rare Diseases
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February 1, 2018
Kevan Chandler is Going Far
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June 14, 2017
Video: How Children’s Hospital of Philadelphia is Helping Leukodystrophy Patients
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June 7, 2017
CD Access to Provide Special Access Program for Duchenne Muscular Dystrophy Patients in Canada
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May 13, 2017
Introducing SideEQ: A Free Tool That Helps You Manage Cancer Treatment Side Effects
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May 3, 2017
Progeria School Curriculum Is Launching!
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April 23, 2017
Designing Effective Rare Disease Registries
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