February 15, 2019
Rare Leader: Lori Sames, CEO, Hannah’s Hope Fund
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February 12, 2019
Rare Disease Groups Launch Newborn Screening Study in Australia
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January 31, 2019
Rare Leader: Nadia Bodkin, Trailblazer of Rare Advocacy, The Rare Advocacy Movement
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January 24, 2019
Rare Leader: Kristin Anthony, President, PTEN Hamartoma Tumor Syndrome Foundation
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January 17, 2019
Rare Leader: David Faughn, Director, NUBPL Foundation
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January 10, 2019
Rare Leader: Taylor Kane, Founder and CEO, Remember the Girls
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January 3, 2019
Rare Leader: Kelly Maynard, President and Founder, Little Hercules Foundation
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December 31, 2017
Rare Leader: Margie Frazier, Executive Director of the Batten Disease Support & Research&h...
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December 21, 2017
Rare Leader: Isabelle Lousada, founder and CEO of the Amyloidosis Research Consortium
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December 21, 2017
NORD Awards Five New Grants for Rare Disease Research
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December 19, 2017
Why Rare Disease Groups Should Do More to Address Psychosocial Issues
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December 14, 2017
Rare Leader: Andra Stratton, President and Co-Founder of Lipodystrophy United
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