September 19, 2019
Rare Leader: Marie Conley, Founder, The Conley Cushing’s Disease Foundation
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September 12, 2019
Rare Leader: Janice Schwartz, Executive Director, Pachyonychia Congenita Project
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September 5, 2019
Rare Leader: Akiva Zablocki, President, The Hyper IgM Foundation
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August 22, 2019
Rare Leader: Isabel Jordan, Chair, Rare Disease Foundation
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August 15, 2019
Rare Leader: Sarah Chisholm, Executive Director, BPAN Warriors
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August 9, 2019
Giving Voice to Patients through Data
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August 8, 2019
Rare Leader: Amber Freed, Founder and CEO, SLC6A1 Connect
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August 6, 2019
Global Genes Names Kimberly Haugstad as New CEO
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August 6, 2019
When the World Gets Dark, Kristin Smedley Shines a Light
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August 5, 2019
Rare Reading Before You Head to the 2019 RARE Patient Advocacy Summit
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August 2, 2019
Cystic Fibrosis Foundation Commits Up to $15 Million to Arcturus for mRNA Therapies
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August 1, 2019
Rare Leader: Jennifer Wescoe, Executive Director, Wescoe Foundation for Pulmonary Fibrosis
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