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A total of 86 posts are filed under Policy
Join BIO Action! A New Way to Advocate
On the forefront of furthering lifesaving, landmark innovation, the biotechnology industry in 2017 promises to continue to heal, fuel and… Continue Reading
Town Hall Launch Gives Platform for Patient Advocacy – Will You Inbox Your Reps?
Facebook announced a new feature this week that allows users to search their address to find local representatives as a means to easily… Continue Reading
Call to Action: Endorsing Scott Gottlieb MD as Commissioner of Food and Drug Administration
Global Genes is joining the rare community to support Dr. Scott Gottlieb’s nomination to serve as Commissioner of Food and Drug… Continue Reading
Register Now For RDLA’s April Webinar
When: Wednesday, April 19th: 2:30 pm to 3:30 pm EST  Where: 440 First Street Northwest, Lobby-level Conference Room , Washington, DC… Continue Reading
Ask Congress to Pass a Real Budget for Medical Research
Instead of passing an updated budget for Fiscal Year 2017 (FY17) before 2016 ended, Congress passed a temporary stop-gap or continuing… Continue Reading
Childhood Cancer
RACE for Children Act Needs Your Help!
There are almost 900 drugs in the adult cancer pipeline, but only a handful are in development for children. The RACE for Children Act will… Continue Reading
EveryLife Community Congress: Regulatory Working Group Webinar
Regulatory Working Group Webinar Clinical Development for Rare Diseases: A Primer for Rare Disease Patients and Advocates Wednesday, March… Continue Reading

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