April 19, 2022
ICER Seeks Policy Debate on Balancing Innovation and Affordability of Orphan Drugs
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April 8, 2022
Rare Disease Organizations Sign Call for Strengthening the Accelerated Approval Pathway
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March 3, 2022
Eurodis Calls for International Community to Assist Ukrainian Rare Disease Community
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March 2, 2022
Calculating the Costs of Rare Diseases
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February 22, 2022
NORD Issues Annual State Report Cards on Rare Policy Issues
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November 2, 2021
Rare Disease Diversity Coalition Calls on Congress to Preserve Orphan Drug Tax Credit
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October 19, 2021
Newsom Vetoes Legislation to Create Rare Disease Advisory Council in California
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August 4, 2021
Industry Group Respond to Proposals that Could Undermine Accelerated Approval
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July 27, 2021
Australian Government Provides $3.3 Million to Support Rare Disease Patients
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July 20, 2021
Netherland Fines Rare Disease Drugmaker for Excessive Price
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June 8, 2021
Rare Disease Company Coalition Names Executive Committee
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May 13, 2021
Rare Disease Drug Developers Form Coalition to Address Challenges
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