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A total of 83 posts are filed under Policy
Register Now For RDLA’s April Webinar
When: Wednesday, April 19th: 2:30 pm to 3:30 pm EST  Where: 440 First Street Northwest, Lobby-level Conference Room , Washington, DC… Continue Reading
Ask Congress to Pass a Real Budget for Medical Research
Instead of passing an updated budget for Fiscal Year 2017 (FY17) before 2016 ended, Congress passed a temporary stop-gap or continuing… Continue Reading
Childhood Cancer
RACE for Children Act Needs Your Help!
There are almost 900 drugs in the adult cancer pipeline, but only a handful are in development for children. The RACE for Children Act will… Continue Reading
EveryLife Community Congress: Regulatory Working Group Webinar
Regulatory Working Group Webinar Clinical Development for Rare Diseases: A Primer for Rare Disease Patients and Advocates Wednesday, March… Continue Reading
Rare Disease Legislative Advocates
RDLA’s March Legislative Webinar/Conference Call
 Wednesday, March 15th: 1:00 pm to 2:00 pm EST    Click ‘register’ below to RSVP and receive the call in number and webinar info:… Continue Reading
Four Ways to Participate Remotely in Rare Disease Week on Capitol Hill
If you are not able to join rare disease advocates from across the country at Rare Disease Week on Capitol Hill on February 27th through… Continue Reading
RDLA’s Rare Disease Week on Capitol Hill Itinerary
Register TODAY to join fellow rare disease patients, caregivers and other advocates from across the country at Rare Disease Week on Capitol… Continue Reading

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