November 2, 2021
Rare Disease Diversity Coalition Calls on Congress to Preserve Orphan Drug Tax Credit
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October 19, 2021
Newsom Vetoes Legislation to Create Rare Disease Advisory Council in California
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August 4, 2021
Industry Group Respond to Proposals that Could Undermine Accelerated Approval
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July 27, 2021
Australian Government Provides $3.3 Million to Support Rare Disease Patients
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July 20, 2021
Netherland Fines Rare Disease Drugmaker for Excessive Price
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June 8, 2021
Rare Disease Company Coalition Names Executive Committee
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May 13, 2021
Rare Disease Drug Developers Form Coalition to Address Challenges
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March 29, 2021
Report Finds Most Rare Disease Drugs Protected by Patents Rather than Exclusivity
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March 8, 2021
NICE Recommends Novartis’ Gene Therapy for SMA
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March 5, 2021
Rare Diseases Account for 11 percent of U.S. Drug Spending, Report Finds
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March 4, 2021
Advocacy Groups Call on Governors to Prioritize Vaccination of Rare Disease Patients and Caregivers
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February 25, 2021
When a Dollar Sign Becomes an Exclamation Point
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