October 9, 2019
When Did Super Become a Bad Thing?
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October 8, 2019
FDA Provides $4.1 Million for Two Natural History Studies
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September 24, 2019
Rare Disease Patients Get Nod in UN Declaration on Universal Health Coverage
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September 13, 2019
Vertex Reaches Access Agreement with Scottish Government for CF Drugs
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September 4, 2019
USCIS Pulls Back Plan to Deport Undocumented Patients Getting Life-Saving Treatments
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September 4, 2019
NICE Recommends Use of Gene Therapy for Rare Inherited Eye Disorder
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August 27, 2019
ARM Issues Statement of Principles on Genome Editing
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August 2, 2019
It’s a Low-Down Dirty Shame
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July 25, 2019
Bipartisan Legislation Seeks to Save Government $100 Billion in Drug Costs
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June 21, 2019
CIRM, Running out of Money, Seeks to Rally Support Among Patient Advocates for Possible Ballot Initiative
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June 19, 2019
Minnesota Governor Signs Bill Creating Rare Disease Advisory Council
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