July 27, 2022
Pfizer Loses Appeal on Copay for Rare Heart Disease Drug
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July 13, 2022
CORD Calls for the Creation of Pan-Canadian Centers of Excellence for Rare Disease
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June 15, 2022
Eurodis and EFPIA Issue Joint Statement on Access to Medicines for Rare Disease Patients
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June 8, 2022
Innovative Medicines Fund Financed with $427 (£340) Million to Provide Earlier Access to Cutting-Edge Treatments on NHS
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May 25, 2022
Connecticut Establishes a Rare Disease Advisory Council
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April 19, 2022
ICER Seeks Policy Debate on Balancing Innovation and Affordability of Orphan Drugs
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April 8, 2022
Rare Disease Organizations Sign Call for Strengthening the Accelerated Approval Pathway
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March 3, 2022
Eurodis Calls for International Community to Assist Ukrainian Rare Disease Community
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March 2, 2022
Calculating the Costs of Rare Diseases
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February 22, 2022
NORD Issues Annual State Report Cards on Rare Policy Issues
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November 2, 2021
Rare Disease Diversity Coalition Calls on Congress to Preserve Orphan Drug Tax Credit
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October 19, 2021
Newsom Vetoes Legislation to Create Rare Disease Advisory Council in California
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