7.23.2016
HEALTH CARE is always personal. As science and technology have advanced, it’s become possible to make it personalized as well, giving us… Continue Reading
7.17.2016
During the summer recess, Members of Congress return to their home states to hear from constituents and attend community events. Meeting… Continue Reading
6.10.2016
Are you interested in learning more about the latest rare disease legislation and how it can help you and your community? How to talk with… Continue Reading
6.3.2016
On June 7th, EveryLife Foundation for Rare Diseases and Research!America invite you… Continue Reading
4.30.2016
The decision made by the FDA Advisory Committee does not only impact the affected Duchenne families, but the entire rare… Continue Reading
4.25.2016
Rare Disease Legislative Advocates (RDLA) will host three regional Legislative Conferences in late June to teach advocates about the… Continue Reading
4.20.2016
If researchers can understand the rare disease that causes tumors to grow in Brynleigh Shillinger’s tiny heart, their knowledge may one… Continue Reading
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