4.5.2018 Rare Daily Staff Kentucky Governor Matthew Bevin vetoed a bill that would promote research, treatment, and education about rare diseases. SB… Continue Reading
3.30.2018 … Continue Reading
3.22.2018 Rare Daily Staff The U.S. House of Representatives Wednesday night passed Right to Try legislation that would make it easier for patients… Continue Reading
3.22.2018 Rare Daily Staff The U.K.’s Medicines & Healthcare products Regulatory Agency said it would allow patients with the rare genetic lipid… Continue Reading
3.20.2018 Rare Daily Staff States across the nation are failing to address the burden of rare diseases through legislative solutions, according to a… Continue Reading
3.14.2018 Rare Daily Staff Legislation intended to give patients easier access to experimental therapies without needing to go through the U.S. Food… Continue Reading
3.6.2018 Rare Daily Staff Two Congressmen have introduced the Rare Disease Advancement, Research, and Education (RARE) Act, a bipartisan bill that… Continue Reading
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