6.4.2018 Rare Daily Staff The National Organization for Rare Disorders is sounding the alarm on the introduction of new programs by health insurers… Continue Reading
5.31.2018 … Continue Reading
5.23.2018 FDA Commissioner Scott Gottlieb this week sparked excitement that the agency is readying to release a new framework to help speed the… Continue Reading
5.22.2018 Rare Daily Staff The U. S. House of Representatives passed legislation that would make it easier for terminally ill patients to get access… Continue Reading
5.18.2018 The high cost of rare disease therapies is often discussed in isolation. When a new drug is approved for an orphan indication and an… Continue Reading
5.9.2018 Rare Daily Staff It takes 15.1 years on average to advance an orphan drug from the first patent filing to product launch—18 percent… Continue Reading
5.3.2018 Rare disease patients in the United Kingdom face unusual barriers to accessing medicines because of the multiple review and reimbursement… Continue Reading
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