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Policy

A total of 69 posts are filed under Policy
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Save the Date for Rare Disease Week on Capitol Hill: February 27th – March 2nd
The Rare Disease Legislative Associates are excited to host patients, caregivers, physicians and other advocates from across the country at… Continue Reading
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The Trump Victory and Its Implications for Patients and Physicians
What does a new Trump healthcare system look like? Patient Journeys’ Stanton Mehr takes a look in a recent article. The stunning upset… Continue Reading
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Register Early for EveryLife’s DC Events: Congressional Caucus, Community Congress, & RareVoice Awards
The Everylife Foundation is excited to announce these upcoming three events in Washington, DC.  All of the events are free, but space is… Continue Reading
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Governor Jerry Brown Signs Legislation Ensuring Babies Born in California Receive the Earliest Treatment for Life-Threatening Conditions
On September 16, Governor Jerry Brown signed into law Senate Bill 1095 (SB 1095), sponsored by the EveryLife Foundation. The bill ensures… Continue Reading
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EveryLife Foundation Asks Patients to Share Their #CuresNOW Signs
Congress is currently debating a vital piece of legislation called the 21st Century Cures Act, but time is running out! The Senate is… Continue Reading
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The Time to Fund More Childhood Cancer Research is NOW
Childrenscause.org is sending a plea out to all patients and families to participate in a petition. “We need your help. Congress is now… Continue Reading
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RDLA & Horizon Gov. Show Comparisons of 2016 Presidential Candidates Health Policies
As the political conventions get underway, HGA has prepared an analysis of the candidates’ health reform positions. The differences… Continue Reading