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Policy

A total of 89 posts are filed under Policy
Legislation to Improve and Expand Newborn Screening Unanimously Passes Florida Legislature
On April 28th, legislation to improve and expand newborn screening in Florida (SB 1124/HB 963) unanimously passed the Florida House. As this… Continue Reading
NYT: Senate Confirms Scott Gottlieb to Head F.D.A.
The Senate voted 57 to 42 on Tuesday to confirm Dr. Scott Gottlieb as commissioner of the Food and Drug Administration, where he will be… Continue Reading
Scott Gottlieb Nomination Approved
Global Genes joined the rare community to support Dr. Scott Gottlieb’s nomination to serve as Commissioner of Food and Drug… Continue Reading
Join BIO Action! A New Way to Advocate
On the forefront of furthering lifesaving, landmark innovation, the biotechnology industry in 2017 promises to continue to heal, fuel and… Continue Reading
Facebook-Town-Hall
Town Hall Launch Gives Platform for Patient Advocacy – Will You Inbox Your Reps?
Facebook announced a new feature this week that allows users to search their address to find local representatives as a means to easily… Continue Reading
petition
Call to Action: Endorsing Scott Gottlieb MD as Commissioner of Food and Drug Administration
Global Genes is joining the rare community to support Dr. Scott Gottlieb’s nomination to serve as Commissioner of Food and Drug… Continue Reading
RDLA
Register Now For RDLA’s April Webinar
When: Wednesday, April 19th: 2:30 pm to 3:30 pm EST  Where: 440 First Street Northwest, Lobby-level Conference Room , Washington, DC… Continue Reading