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Policy

A total of 191 posts are filed under Policy
U.S. Food and Drug Administration Orphan Drug Designations in November 2018
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Senator Gillibrand Calls for $1 Billion in Emergency Funding to Combat AFM
Rare Daily Staff U.S. Senator Kristen Gillibrand, D-New York, called on Congress to provide the U.S. Centers for Disease Control and… Continue Reading
Now Comes the Hard Part
Earlier this month during Novartis’ R&D Day, Dave Lennon caught the attention of the payer community when he said that the company’s… Continue Reading
Teens Want a Say about Their Genetic Information
When my wife became pregnant with our first child, the technician performing the ultrasound asked if we wanted to know the sex of the child.… Continue Reading
China Alliance for Rare Disease Holds Inaugural Meeting
Rare Daily Staff The inaugural meeting of the China Alliance for Rare Disease (CARD) was held in Beijing, China on October 24th. The… Continue Reading
U.S. Food and Drug Administration Orphan Drug Designations in October 2018
Source: U.S. Food and Drug Administration Updated December 3, 2018… Continue Reading
Why Rare Disease Drug Developers Need Regular Interaction with the FDA
Despite accelerated pathways for the development and approval of rare disease therapies, significant challenges remain for companies wishing… Continue Reading
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