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Policy

A total of 71 posts are filed under Policy
21st Century Cures Act passed by the House today, OPEN ACT dropped from bill
Source On Friday, November 25, leaders of the House of Representatives Energy and Commerce Committee and Senate Health, Education, Labor and… Continue Reading
Chairman Fred Upton Kicks Off Debate on #CuresNow with Powerful Speech
Below is the speech, as prepared, by Chairman Fred Upton for the #CuresNow movement. There is not a single person in this chamber or… Continue Reading
Save the Date for Rare Disease Week on Capitol Hill: February 27th – March 2nd
The Rare Disease Legislative Associates are excited to host patients, caregivers, physicians and other advocates from across the country at… Continue Reading
The Trump Victory and Its Implications for Patients and Physicians
What does a new Trump healthcare system look like? Patient Journeys’ Stanton Mehr takes a look in a recent article. The stunning upset… Continue Reading
Register Early for EveryLife’s DC Events: Congressional Caucus, Community Congress, & RareVoice Awards
The Everylife Foundation is excited to announce these upcoming three events in Washington, DC.  All of the events are free, but space is… Continue Reading
Governor Jerry Brown Signs Legislation Ensuring Babies Born in California Receive the Earliest Treatment for Life-Threatening Conditions
On September 16, Governor Jerry Brown signed into law Senate Bill 1095 (SB 1095), sponsored by the EveryLife Foundation. The bill ensures… Continue Reading
EveryLife Foundation Asks Patients to Share Their #CuresNOW Signs
Congress is currently debating a vital piece of legislation called the 21st Century Cures Act, but time is running out! The Senate is… Continue Reading
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