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A total of 11 posts are filed under Healthcare
Duchenne UK Collaborates with Industry to Speed Payer Value Assessments
Rare Daily Staff Duchenne UK has launched a collaboration with five pharmaceutical companies developing treatments for Duchenne muscular… Continue Reading
ICER Issues Modified Framework for Assessing Value of Treatments for Ultra-Rare Diseases
Rare Daily Staff The Institute for Clinical and Economic Review, an independent non-profit research institute that analyzes the evidence on… Continue Reading
Trump Taps Former Drug Industry Exec to Head HHS
Daniel S. Levine President Donald Trump said he would nominate Alex Azar, an attorney and former drug industry executive who served in the… Continue Reading
Orphan Drugs Account of 7.9 Percent of U.S. Drug Spending in 2016, Study FindsOrphan Drugs Account of 7.9 percent of U.S. Drug Spending in 2016, Study Finds
Rare Daily Staff Orphan drugs accounted for only 7.9 percent of the $460 billion in drug sales in the United States in 2016, according to a… Continue Reading
New Therapies Pushing Orphan Drug Prices into Payers’ Crosshairs
Daniel S. Levine Rare disease therapies have been largely immune to the pricing battles over drugs, but controversy over the costs of new… Continue Reading
Understanding What Rare Disease Caregivers Face
Caregivers of patients with rare diseases are providers, protectors, and advocates. They have forced themselves to learn the language of… Continue Reading
Bipartisan Bill Seeks to Extend Expiring Children’s Health Insurance Program
Rare Daily Staff Sen. Orrin Hatch (R-Utah), and Sen. Ron Wyden (D-Oregon) introduced legislation that would extend the Children’s Health… Continue Reading