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A total of 22 posts are filed under Healthcare
NORD Warns of Changes to Health Insurance Plans That Can Be Costly to Patients
Rare Daily Staff The National Organization for Rare Disorders is sounding the alarm on the introduction of new programs by health insurers… Continue Reading
Why Rare Disease Patients Should Worry About the Shifting Discussion from Value to Scarcity
The high cost of rare disease therapies is often discussed in isolation. When a new drug is approved for an orphan indication and an… Continue Reading
ICER Says Roche’s Hemophilia A Therapy Improves Health While Lowering Costs
Rare Daily Staff The Institute for Clinical and Economic Review, an independent, nonprofit that analyzes the cost-effectiveness of… Continue Reading
Why Patient Groups Shouldn’t Dismiss Report on Pharma Influence
Earlier this month, Kaiser Health News launched “Pre$cription for Power,” a database that tracks Big Pharma contributions to patient… Continue Reading
New Report Finds States Fall Short on Policies to Help People with Rare Diseases
Rare Daily Staff States across the nation are failing to address the burden of rare diseases through legislative solutions, according to a… Continue Reading
New Zealand Rare Disease Group Says NZ Government Breaks Election Promise
Rare Daily Staff The New Zealand Organisation for Rare Disorders said the New Zealand Government is failing to honor its election promise to… Continue Reading
NICE Draft Guidance Says BioMarin’s ERT for Batten Disease Not Cost Effective
Rare Daily Staff The United Kingdom’s National Institute for Health and Care Excellence issued a preliminary recommendation not to… Continue Reading

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