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A total of 27 posts are filed under Healthcare
New Zealand Agency Takes Steps to Improve Access to Rare Disease Therapies
Rare Daily Staff PHARMAC, the New Zealand government agency charged with determining which pharmaceuticals will be publicly funded in that… Continue Reading
CMS Says Drugs Approved through FDA Accelerated Approval Must Be Covered
Rare Daily Staff The Centers for Medicare and Medicaid Services issued a notice to state Medicaid programs saying that drugs approved under… Continue Reading
DOJ Says It Won’t Defend ACA in Latest Challenge to Constitutionality—Threatens Protections on Pre-Existing Conditions
Rare Daily Staff The U.S. Department of Justice said it agrees with plaintiffs in a lawsuit that seeks to throw out as unconstitutional the… Continue Reading
Alliance for Regenerative Medicine Launches Foundation to Promote Understanding of Cell and Gene Therapies
Rare Daily Staff The Alliance for Regenerative Medicine has launched the ARM Foundation for Cell and Gene Medicine to educate and engage the… Continue Reading
Genome Canada Creates Rare Disease Pilot to Serve as Foundation for Precision Health Initiative
Rare Daily Staff Genome Canada has launched a national initiative for the clinical implementation of precision health with a pilot program… Continue Reading
NORD Warns of Changes to Health Insurance Plans That Can Be Costly to Patients
Rare Daily Staff The National Organization for Rare Disorders is sounding the alarm on the introduction of new programs by health insurers… Continue Reading
Why Rare Disease Patients Should Worry About the Shifting Discussion from Value to Scarcity
The high cost of rare disease therapies is often discussed in isolation. When a new drug is approved for an orphan indication and an… Continue Reading

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