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A total of 24 posts are filed under Healthcare
Alliance for Regenerative Medicine Launches Foundation to Promote Understanding of Cell and Gene Therapies
Rare Daily Staff The Alliance for Regenerative Medicine has launched the ARM Foundation for Cell and Gene Medicine to educate and engage the… Continue Reading
Genome Canada Creates Rare Disease Pilot to Serve as Foundation for Precision Health Initiative
Rare Daily Staff Genome Canada has launched a national initiative for the clinical implementation of precision health with a pilot program… Continue Reading
NORD Warns of Changes to Health Insurance Plans That Can Be Costly to Patients
Rare Daily Staff The National Organization for Rare Disorders is sounding the alarm on the introduction of new programs by health insurers… Continue Reading
Why Rare Disease Patients Should Worry About the Shifting Discussion from Value to Scarcity
The high cost of rare disease therapies is often discussed in isolation. When a new drug is approved for an orphan indication and an… Continue Reading
ICER Says Roche’s Hemophilia A Therapy Improves Health While Lowering Costs
Rare Daily Staff The Institute for Clinical and Economic Review, an independent, nonprofit that analyzes the cost-effectiveness of… Continue Reading
Why Patient Groups Shouldn’t Dismiss Report on Pharma Influence
Earlier this month, Kaiser Health News launched “Pre$cription for Power,” a database that tracks Big Pharma contributions to patient… Continue Reading
New Report Finds States Fall Short on Policies to Help People with Rare Diseases
Rare Daily Staff States across the nation are failing to address the burden of rare diseases through legislative solutions, according to a… Continue Reading

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