July 25, 2019
Bipartisan Legislation Seeks to Save Government $100 Billion in Drug Costs
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June 19, 2019
Minnesota Governor Signs Bill Creating Rare Disease Advisory Council
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April 24, 2019
ACE Kids Act to Improve Coordination of Care for Medically Complex Kids
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November 28, 2018
Senator Gillibrand Calls for $1 Billion in Emergency Funding to Combat AFM
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October 19, 2018
Why Rare Disease Drug Developers Need Regular Interaction with the FDA
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September 19, 2018
Bill Would Seek to Bridge Development Gap for Rare Disease Drugs with Megafund
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September 10, 2018
ACMG Call for National Policy to Control Drug Costs
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May 22, 2018
Right-to-Try Legislation Passes House, Heads to Trump for Signature
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May 9, 2018
Patent-to-Launch time for Orphan Drugs 2.3 Years Longer than Other Drugs, Report Finds
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April 16, 2018
Why Patient Groups Shouldn’t Dismiss Report on Pharma Influence
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April 5, 2018
Kentucky Governor Vetoes Bill to Create Rare Disease Council
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March 22, 2018
House Passes Right to Try Bill
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