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A total of 7 posts are filed under Legislation
European Commission Says Regs Helped Drive Pediatric Drug Development, But Failed to Drive Rare Disease Drug Development for Kids
Daniel S. Levine Ten years ago, regulators in Europe set out to address a problem. Drug companies often weren’t pursuing pediatric… Continue Reading
Understanding What Rare Disease Caregivers Face
Caregivers of patients with rare diseases are providers, protectors, and advocates. They have forced themselves to learn the language of… Continue Reading
Bipartisan Bill Seeks to Extend Expiring Children’s Health Insurance Program
Rare Daily Staff Sen. Orrin Hatch (R-Utah), and Sen. Ron Wyden (D-Oregon) introduced legislation that would extend the Children’s Health… Continue Reading
Rare Disease Organizations Call on Congress to Preserve Orphan Drug Tax Credit
Rare Daily Staff A group of nearly 140 rare disease organizations has sent a letter to leaders of the Senate Finance Committee and the House… Continue Reading