August 9, 2019
Giving Voice to Patients through Data
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August 8, 2019
Rare Leader: Amber Freed, Founder and CEO, SLC6A1 Connect
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August 1, 2019
Rare Leader: Jennifer Wescoe, Executive Director, Wescoe Foundation for Pulmonary Fibrosis
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July 11, 2019
Rare Leader: Kelly Trout, Co-founder, International WAGR Syndrome Association
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July 11, 2019
How One Rare Disease Organization Boosted Another
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June 27, 2019
Rare Leader: Tuesdi Dyer, Executive Director, CFC International
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June 14, 2019
Program Seeks to Drive Collaborative Research Model Among Rare Disease Groups
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June 6, 2019
Rare Leader: Sandra Bedrosian-Sermone, ADNP Kids Research Foundation
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May 30, 2019
Rare Leader: Amy Brin, Executive Director, Child Neurology Foundation
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May 23, 2019
Rare Leader: Rob Long, Executive Director, Uplifting Athletes
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May 22, 2019
Lessons for Rare Disease Advocates from Game of Thrones
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May 16, 2019
Peroxisomal Disorders Reach New Heights with Help from the RARE Patient Impact Grant
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