May 12, 2022
At a Crossroad for Innovation in Rare Disease
Read More
April 26, 2022
Christina Hartman: Rare Mom, Advocate, Professional
Read More
April 25, 2022
Caroline Loewy: Rare Mom, Advocate, Non-Profit Extraordinaire
Read More
April 24, 2022
John Crowley: Rare Dad, Advocate, Researcher, Entrepreneur
Read More
April 24, 2022
Irie Long: Rare Partner & Advocate
Read More
April 23, 2022
Effie Parks: Rare Mom, Podcaster for Once Upon a Gene
Read More
April 22, 2022
Daniel DeFabio: Rare Dad, Filmmaker, Advocate
Read More
April 8, 2022
Genetic Testing: Questions to ask when you get a diagnosis
Read More
February 25, 2022
2022 RARE Meet-Up Grant Recipients Announced
Read More
October 8, 2020
Growing Up Rare: The Young Adult Experience with Rare Disease
Read More
February 28, 2020
Fighting Back with Kathryn Garrity
Read More
Load More
X