November 1, 2019
Connecting Young Adults with Rare and Chronic Conditions
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October 10, 2019
Rare Leader: Keisha Greaves, Founder, Girls Chronically Rock
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October 4, 2019
How to Live with a Disability with Your Mojo Intact
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September 13, 2019
A Doctor’s Quest to Cure His Own Rare Disease
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September 11, 2019
A Doctor’s Quest to Cure His Own Rare Disease
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August 2, 2019
It’s a Low-Down Dirty Shame
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July 6, 2019
Addi and Cassi Hempel, Patients at the Forefront of an Experimental NPC Therapy, Die at 14
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July 3, 2019
Repurposed Drug Saves Life of Child with Rare Lymphatic Disorder
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April 19, 2019
A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition
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April 1, 2019
FDA Orphan Drug Designations Q1 2019
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