February 15, 2019
Rare Leader: Lori Sames, CEO, Hannah’s Hope Fund
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February 8, 2019
Upcoming Events on the Rare Calendar
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January 31, 2019
Rare Leader: Nadia Bodkin, Trailblazer of Rare Advocacy, The Rare Advocacy Movement
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January 24, 2019
Rare Leader: Kristin Anthony, President, PTEN Hamartoma Tumor Syndrome Foundation
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January 17, 2019
Rare Leader: David Faughn, Director, NUBPL Foundation
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January 10, 2019
Rare Leader: Taylor Kane, Founder and CEO, Remember the Girls
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January 3, 2019
Rare Leader: Kelly Maynard, President and Founder, Little Hercules Foundation
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December 28, 2018
Rare Leader: Christine Waggoner, President and Co-Founder, Cure GM1 Foundation
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December 20, 2018
Rare Leader: Brad Crittenden, Executive Director, Canadian Association of Pompe
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December 13, 2018
Gilbert Family Foundation Announces $12 Million Gene Therapy Initiative in NF1
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