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Rare Community

A total of 513 posts are filed under Rare Community
Nominate a Lysosomal Hero For the Sanofi Genzyme TORCH Awards
We are proud to announce the first annual Sanofi Genzyme TORCH Awards! The TORCH Awards are your opportunity to recognize individuals of all… Continue Reading
LEMS Meetup 2017: Friday January 20th
Kimpton Hotel Palomar | 117 South 17th Street | Philadelphia, PA 19103 | (215) 563-5006 Come join the discussion and benefit from… Continue Reading
Register Now For Immune Deficiency Foundation’s 2017 National Conference in Anaheim, CA
The IDF National Conference is our preeminent event, held biennially in varied and diverse locations throughout the U.S., and is a platform… Continue Reading
Save the Date: Re (ACT) Community Hosts World Rare Disease Day Discussion
To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership… Continue Reading
Realities of Rare Disease and the Role of Patient Investors
For the EBD Group, Guest post by Nicole Boice, Founder & CEO, Global Genes – Allies in Rare Disease Rare Disease represents the largest… Continue Reading
Salon V’co Hosts First Annual Voices for Rare Disease – A Smash Hit Benefiting Children
Victor Manuell and Corey Bastean, Co-owners of Lake Zurich’s , Salon V’co, wanted to give back this holiday season, so they teamed up… Continue Reading
Reserve Your Ticket for A Rare Affair on Sunday, January 8, 2017
Sunday, January 8, 2017 6:30 PM – 10:00 PM Join venture capitalists, biotech and finance executives visiting San Francisco to attend the… Continue Reading

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