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Rare Community

A total of 497 posts are filed under Rare Community
FindaCure Releases Drug Repurposing for Rare Diseases Scientific Conference 2017 Provisional Programme
With just 4 weeks until the end of their early bird ticket sales, FindaCure is pleased to announce the provisional programme for… Continue Reading
WSJ: The Doctors Who Solve Medical Mysteries
Wall Street Journal | Story by Sumathi Reddy at When patients have a disease that can’t be diagnosed, they get… Continue Reading
Ambry Genetics CEO and Director of Medical Affairs to Appear on the Lifetime series ‘Access Health’
Ambry Genetics’ Chief Executive Officer, Aaron Elliott, Ph.D., and Ambry Director of Medical Affairs and Breast Cancer Surgeon Robina… Continue Reading
Denied: A Rare Healthcare Insurance Battle
Nikki Batsford, who is 33 and in grave condition from hydrocephalus, had been fighting for five months to get insurance coverage for… Continue Reading
New Zealand’s Rare Disease Organization Putting Words into Action
The New Zealand Organization for Rare Disorders (NZORD) aims to “improve, support, assist and promote better healthcare and well-being for… Continue Reading
Rare Disease Report Interviews Janet Woodcock – Patients, Clinical Trials, and the FDA
At the NORD Rare Disease and Orphan Drug Breakthrough Summit in Arlington Virginia, we talked with Janet Woodcock, MD, Director of the… Continue Reading
Reminder: RDLA’s October Legislative Webinar/Conference Call TODAY
Wednesday, October 26th: 1:00 pm to 2:00 pm EST  Click ‘register’ below to RSVP and receive the call in number and webinar info:… Continue Reading