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Rare Community

A total of 688 posts are filed under Rare Community
Alliance for Regenerative Medicine Launches Foundation to Promote Understanding of Cell and Gene Therapies
Rare Daily Staff The Alliance for Regenerative Medicine has launched the ARM Foundation for Cell and Gene Medicine to educate and engage the… Continue Reading
Rare Leader: Allison Fine, Founder and Executive Director of the Center for Chronic Illness
The Basics Name: Allison Fine Title: Founder and Executive Director Organization:  Center for Chronic Illness Disease focus:  Providing… Continue Reading
Rare Leader: Neena Nizar, Founder and Executive Director of The Jansen’s Foundation
The Basics Name: Neena Nizar Title: Founder and Executive Director Organization:  The Jansen’s Foundation Disease focus:  Jansen’s… Continue Reading
Failed Drug May Have New Life as Treatment for Rare Motor Neuron Disease
Rare Daily Staff A team of international researchers have identified a failed drug first discovered in the 1980s as a potential new… Continue Reading
Rare Leader: Katie Stevens, President of Dyskeratosis Congenita Outreach
The Basics Name: Katie Stevens Title: President Organization:  Dyskeratosis Congenita Outreach Disease focus:  Dyskeratosis congenita (and… Continue Reading
Rare Leader: Kelly Ranallo, Founder and President, Turner Syndrome Global Alliance
The Basics Name: Kelly Ranallo Title: Founder and President Organization:  Turner Syndrome Global Alliance Disease focus:  Turner syndrome… Continue Reading
Rare Leader: Monika Jones, CEO, The Brain Recovery Project: Childhood Epilepsy Surgery Foundation
The Basics Name: Monika Jones Title: Co-Founder and CEO Organization: The Brain Recovery Project: Childhood Epilepsy Surgery Foundation… Continue Reading

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