April 26, 2022
Christina Hartman: Rare Mom, Advocate, Professional
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April 25, 2022
Caroline Loewy: Rare Mom, Advocate, Non-Profit Extraordinaire
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April 24, 2022
John Crowley: Rare Dad, Advocate, Researcher, Entrepreneur
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April 22, 2022
Daniel DeFabio: Rare Dad, Filmmaker, Advocate
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April 20, 2022
RARE Global Advocacy Alliance Member Spotlight: Melissa Bryce
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April 5, 2022
Foundation Alliance Upgrades to Global Advocacy Alliance
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February 25, 2022
2022 RARE Meet-Up Grant Recipients Announced
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February 12, 2021
Mila Makovec, Recipient of Bespoke ASO for Ultra-Rare Condition, Dies at 10
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December 2, 2020
Fenrici Backpacks: Lessons in Resilience
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November 10, 2020
RARE Patient Advocacy: Forging Connections for Change
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October 14, 2020
Global Genes Enters Partnership with Rady Children’s Institute for Genomic Medicine
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July 13, 2020
RARE Partnership in Advocacy, Funding, and Research for Gastrointestinal Stromal Tumor
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