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Awareness

A total of 183 posts are filed under Awareness
Abeona Therapeutics Inc. Rings Closing Bell at Nasdaq on World Rare Disease Day
Congratulations to our friends at Abeona Therapeutics Inc. (ABEO), a leading clinical-stage biopharmaceutical company focused on developing… Continue Reading
Alex Undiagnosed: A Neurodegenerative Disease Goes Unnamed
It’s been ten long years and no one knows what’s wrong with Alex. He’s been gradually worsening due to a progressive neurodegenerative… Continue Reading
NYC Health and Hospital Celebrates Rare Disease Day
NYC Health and Hospital are celebrating World Rare Disease Day this year with a day of events!   Did You Know?? 1 in 10 people has a rare… Continue Reading
Spotlight Shined on The Bohring-Opitz Syndrome Foundation From Special Books by Special Kids
The Bohring-Opitz Syndrome (BOS) Foundation, Inc. is excited to announce the rare disorder has been gaining international attention this… Continue Reading
Rare Diseases South Africa Invites You to Their #DenimWalk
2017 marks 10 consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2017 puts the focus on the daily… Continue Reading
The Variability of Marfan Syndrome: Spreading Awareness and Connecting the Patient Community
Siblings will always argue over who is taller. But what happens when your height is one of the symptoms of a life-threatening rare disease?… Continue Reading
Canadian Student Advocates for Rare Disease Patients with Inadequate Care
Did you know that roughly 8 million Canadians don’t have access to the proper medications that they require? This isn’t common knowledge… Continue Reading