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A total of 170 posts are filed under Awareness
Pitt Hopkins Awareness Day Coming September 18th
Organization: Pitt Hopkins Research Foundation Submitted by: Jessica Fletcher Sunday, September 18th marks our 4th annual International Pitt… Continue Reading
2nd Annual Erdheim-Chester Disease Awareness Week
Organization: ECD Global Alliance Submitted by: Elizabeth Anderson September 12-17, 2016 will mark the Erdheim-Chester Disease Global… Continue Reading
SMA Community Celebrates SMA Awareness Month in August
Spinal muscular atrophy (SMA) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord,… Continue Reading
Launch of FindaCure’s Peer Mentoring 2016
Find a Cure is happy to announce the launch of their Rare Disease Peer Mentoring Programme! Following their successful pilot, they are… Continue Reading
Segment on Huntington’s Disease to Appear on Access Health
</iframe   Huntington’s Disease is an inherited and incurable brain disorder effecting motor, cognitive and behavioral functions. We can… Continue Reading
CMTC (Van Lohuizen Syndrome) US Annual Conference July 23rd, 2016 held in Columbus, Ohio
Organization: CMTC-OVM US Submitted by: Rebecca Gallis The general session will include informative presentations from: Physicians in the… Continue Reading
Join Diane Lea 50/50 Rider on June 18th in San Diego for Her Kick-Off Event!
Make sure to join the party to send off 50/50 Rider, Diane Lea. The event will take place at the Sunshine Company in Ocean Beach to wish her… Continue Reading

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