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Awareness

A total of 170 posts are filed under Awareness
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Pitt Hopkins Awareness Day Coming September 18th
Organization: Pitt Hopkins Research Foundation Submitted by: Jessica Fletcher Sunday, September 18th marks our 4th annual International Pitt… Continue Reading
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2nd Annual Erdheim-Chester Disease Awareness Week
Organization: ECD Global Alliance Submitted by: Elizabeth Anderson September 12-17, 2016 will mark the Erdheim-Chester Disease Global… Continue Reading
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SMA Community Celebrates SMA Awareness Month in August
Spinal muscular atrophy (SMA) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord,… Continue Reading
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Launch of FindaCure’s Peer Mentoring 2016
Find a Cure is happy to announce the launch of their Rare Disease Peer Mentoring Programme! Following their successful pilot, they are… Continue Reading
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Segment on Huntington’s Disease to Appear on Access Health
</iframe   Huntington’s Disease is an inherited and incurable brain disorder effecting motor, cognitive and behavioral functions. We can… Continue Reading
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CMTC (Van Lohuizen Syndrome) US Annual Conference July 23rd, 2016 held in Columbus, Ohio
Organization: CMTC-OVM US Submitted by: Rebecca Gallis The general session will include informative presentations from: Physicians in the… Continue Reading
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Join Diane Lea 50/50 Rider on June 18th in San Diego for Her Kick-Off Event!
Make sure to join the party to send off 50/50 Rider, Diane Lea. The event will take place at the Sunshine Company in Ocean Beach to wish her… Continue Reading