November 2, 2018
Inaugural Familial Chylomicronemia Syndrome Awareness Day—November 2, 2018
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October 25, 2018
Neuromuscular Disease Foundation Receives $2.5 Million Challenge Grant for HIBM Gene Therapy
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July 3, 2017
Notre Dame Football Player Support Rare Disease Community Through Bowling Event
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June 15, 2017
Rare Disease South Africa Offers Port Training Opportunity
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June 10, 2017
RareVoice Awards: Nominate Your Favorite Rare Disease Advocate for an Abbey!
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June 7, 2017
RDLA’s June Legislative Webinar and In-Person Meeting
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June 6, 2017
EveryLife Foundation: 9th Annual Rare Disease Scientific Workshop
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May 30, 2017
RARE on the Road Rare Disease Leadership Tour Heads to Kansas City and…
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May 25, 2017
The Balancing Act: Orphan Drugs Conquering Rare Disease One-By-One at Conference
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May 17, 2017
FindaCure Workshop Agenda: A-Z To Setting Up a Patient Group’ Workshop
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May 8, 2017
Michael’s Cause Has Cause for Celebration After Golf Fundraiser
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