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Community Events

A total of 193 posts are filed under Community Events
Experts Plan Paris Gathering This October to Discuss LMNA-Congneital Muscular Dystrophy
Only about 20 people in the entire world understand the underlying disease mechanisms of LMNA-related CMD, and later this month, they will… Continue Reading
2016 RARE Champion of Hope Dr. Phil Reilly to Keynote Upcoming Rare Disease Meeting in Washington, DC
The EveryLife Foundation for Rare Diseases is convening its annual Community Congress meeting in Washington, D.C. on November 16th. The… Continue Reading
Join RDLA for Their October Legislative Webinar/Conference Call
Wednesday, October 26th: 1:00 pm to 2:00 pm EST Agenda: Lymphedema Treatment Act:Patricia Egan, Interim Executive Director & CEO, National… Continue Reading
EveryLife Community Congress: New Agenda
Get the inside-track on our legislative initiatives and learn about the activities each working group is undertaking. This is your… Continue Reading
CureDuchenne Cares Hosts Inaugural Family Summit This October
The inaugural CureDuchenne Cares Family Summit, a complimentary educational seminar for families who have loved ones with Duchenne muscular… Continue Reading
Join Congenital Hyperinsulinism International for the Sugar Shindig, 10/8
Join Congenital Hyperinsulinism International during their Sugar Shindig this Saturday, October 8th 2016. This year’s event honors Dr.… Continue Reading
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Today is FH Awareness Day: Celebrate On Twitter!
FH Awareness Day (est. 2012) is a campaign initiated by the FH Foundation to raise awareness of FH in the general public. This annual event… Continue Reading