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Community Events

A total of 216 posts are filed under Community Events
Napa In Newport
Napa In Newport Raises $1 Million To Help Find a Cure for Duchenne Muscular Dystrophy
More than 400 people gathered at the Ritz-Carlton on Saturday, March 4 to enjoy the nectar of top Napa Valley wineries and help find a cure… Continue Reading
Pope Francis to Meet with Huntington’s Disease Patients on May 18, 2017
On May 18th, in the first ever papal audience with Huntington Disease families, Pope Francis will meet with the people affected by this… Continue Reading
RDLA’s March Legislative Webinar/Conference
RDLA’s March Legislative Webinar & Conference Call Wednesday, March 15th: 1:00 pm to 2:00 pm EST Once a month RDLA convenes in person… Continue Reading
Rare Disease Research: The National Institutes of Health Supports Science that Saves Lives
March 9, 2017 | Noon – 1:30 PM Longworth House Office Building, Room 1310 In cooperation with Congressmen Scott Peters (CA-52) and Leonard… Continue Reading
NYC Health and Hospital Celebrates Rare Disease Day
NYC Health and Hospital are celebrating World Rare Disease Day this year with a day of events!   Did You Know?? 1 in 10 people has a rare… Continue Reading
Rare Diseases International Policy Event, Geneva
To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership… Continue Reading
Michael’s Cause 6th Annual Evening of Hope Dinner Dance
The 6th annual Michael’s Cause Evening of Hope Dinner Dance will be held on April 1, 2017 at the Hilton Garden Inn Staten Island, NY.… Continue Reading

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Upcoming Events

Sep 14

Rare Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

Rare Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

Rare Patient Advocacy Summit

September 15 @ 8:00 am - 4:00 pm
Sep 15

Community Nominated Ceremony and Reception

September 15 @ 4:30 pm - 9:00 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

Rare Day of Beauty

September 16 @ 12:30 pm - 4:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm