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Community Events

A total of 203 posts are filed under Community Events
Save the Date: Re (ACT) Community Hosts World Rare Disease Day Discussion
To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership… Continue Reading
Salon V’co Hosts First Annual Voices for Rare Disease – A Smash Hit Benefiting Children
Victor Manuell and Corey Bastean, Co-owners of Lake Zurich’s , Salon V’co, wanted to give back this holiday season, so they teamed up… Continue Reading
Reserve Your Ticket for A Rare Affair on Sunday, January 8, 2017
Sunday, January 8, 2017 6:30 PM – 10:00 PM Join venture capitalists, biotech and finance executives visiting San Francisco to attend the… Continue Reading
Deadline Approaches for NTSAD Proposals on Tay-Sachs, GM-1, Sandhoff and Canavan Projects
NTSAD is soliciting proposals for innovative research projects that involve basic research, translational studies or clinical studies in the… Continue Reading
By Patients for Patients Scleroderma Experience Symposium
I say I’m on borrowed time because of how I was diagnosed and what my parents were told. Things started going bad when I was really young.… Continue Reading
Eighth Annual SBP Rare Disease Day Symposium Alagille Syndrome
About the Symposium The annual Rare Disease Day Symposium at Sanford Burnham Prebys Medical Discovery Institute (SBP) seeks to serve… Continue Reading
A Conference of Hope: One Attendee’s Global Genes Summit Experience
By Brenda Conger This year’s Global Genes Summit in California was a two- day event partnering with rare disease patients, caregivers,… Continue Reading

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