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Community Events

A total of 231 posts are filed under Community Events
Rare Disease South Africa Offers Port Training Opportunity
Rare Diseases South Africa, in partnership with B Braun Medical, has developed a port access training program for patients, caregivers and… Continue Reading
RareVoice Awards: Nominate Your Favorite Rare Disease Advocate for an Abbey!
Save the Date for this free and widely attended event:    Wednesday, November 15, 2017 Arena Stage in Washington, DC If you know of… Continue Reading
RDLA’s June Legislative Webinar and In-Person Meeting
Wednesday, June 14th, 2017 12:00 – 1:00 pm ET 440 First Street Northwest, Suite 430 Washington, DC 20001 Latest Update on FDA Hiring… Continue Reading
EveryLife Foundation: 9th Annual Rare Disease Scientific Workshop
Emerging Technologies for Rare Diseases: Clinical and Regulatory Case Studies and Approval Pathways Tuesday, September 12th, 2017 8:30am –… Continue Reading
RARE Disease Fair Seattle
Westlake Park | 06/03/2017 | 11:00 am – 4:00 pm One in ten people in the United States suffer from a rare disease.  That… Continue Reading
RARE on the Road Rare Disease Leadership Tour Heads to Kansas City and Portland
Thank you to the rare disease patients and caregivers from across the southeast who recently joined the Everylife Foundation and Global… Continue Reading
The Balancing Act: Orphan Drugs Conquering Rare Disease One-By-One at Conference
The Orphan Drug Conference USA 2017 welcomed thousands of attendees as science, industry, big pharma, and patient advocacy groups met in… Continue Reading

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