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Community Events

A total of 213 posts are filed under Community Events
Rare Disease Research: The National Institutes of Health Supports Science that Saves Lives
March 9, 2017 | Noon – 1:30 PM Longworth House Office Building, Room 1310 In cooperation with Congressmen Scott Peters (CA-52) and Leonard… Continue Reading
NYC Health and Hospital Celebrates Rare Disease Day
NYC Health and Hospital are celebrating World Rare Disease Day this year with a day of events!   Did You Know?? 1 in 10 people has a rare… Continue Reading
Rare Diseases International Policy Event, Geneva
To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership… Continue Reading
Michael’s Cause 6th Annual Evening of Hope Dinner Dance
The 6th annual Michael’s Cause Evening of Hope Dinner Dance will be held on April 1, 2017 at the Hilton Garden Inn Staten Island, NY.… Continue Reading
Rare Disease Report: 4-Year-Old Girl Contracts Rare Brain Disease After Tonsil Surgery
By Andrew Black at Rare Disease Report   She went in to have her tonsil’s removed, she came back with a rare brain disease known as acute… Continue Reading
Rare Diseases South Africa Invites You to Their #DenimWalk
2017 marks 10 consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2017 puts the focus on the daily… Continue Reading
Rare Disease Day Roundup: What’s Happening in Your Neighborhood?
Dewey Marino from San Diego, California wrote to inform us about a golf tournament taking place on November 25th to benefit the DDX3X… Continue Reading