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Community Events

A total of 209 posts are filed under Community Events
Rare Disease Report: 4-Year-Old Girl Contracts Rare Brain Disease After Tonsil Surgery
By Andrew Black at Rare Disease Report   She went in to have her tonsil’s removed, she came back with a rare brain disease known as acute… Continue Reading
Rare Diseases South Africa Invites You to Their #DenimWalk
2017 marks 10 consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2017 puts the focus on the daily… Continue Reading
Rare Disease Day Roundup: What’s Happening in Your Neighborhood?
Dewey Marino from San Diego, California wrote to inform us about a golf tournament taking place on November 25th to benefit the DDX3X… Continue Reading
Nominate a Lysosomal Hero For the Sanofi Genzyme TORCH Awards
We are proud to announce the first annual Sanofi Genzyme TORCH Awards! The TORCH Awards are your opportunity to recognize individuals of all… Continue Reading
LEMS Meetup 2017: Friday January 20th
Kimpton Hotel Palomar | 117 South 17th Street | Philadelphia, PA 19103 | (215) 563-5006 Come join the discussion and benefit from… Continue Reading
Register Now For Immune Deficiency Foundation’s 2017 National Conference in Anaheim, CA
The IDF National Conference is our preeminent event, held biennially in varied and diverse locations throughout the U.S., and is a platform… Continue Reading
Save the Date: Re (ACT) Community Hosts World Rare Disease Day Discussion
To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership… Continue Reading

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