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Community Events

A total of 184 posts are filed under Community Events
“Staying Safe in a Medically Complex World” Rare New England Hosts Upcoming Conference
Organization: Rare New England Submitted by: Julie Gortze RNE is holding a 2-day conference on Nov 12 and 13, 2016 in MA to provide tools… Continue Reading
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NTSAD’s Sixth Annual Day of Hope!
The day where hope knows no boundaries. Join NTSAD to rally and raise funds for research! We’ve raised over $168,000 since 2011. Let’s… Continue Reading
Occuring in Indiana
Rural Indiana Hosts “Friedreich’s Ataxia Woodstock” Festival
The first time Jake Tompkins knew something was wrong was when he fell off a stage. He was a touring musician, playing bass guitar. During a… Continue Reading
Shot of a happy young family playing together on the beach
Rare Disease Health and Wellness Expo in Ajax, Canada Sept. 24th
Organization: Carion Fenn Foundation First annual Health & Wellness, Rare Disease Expo by Carion Fenn Foundation supported by The Town… Continue Reading
Rare Disease Report’s “Rare Disease Heroes” Nominations
This award was established to recognize hospitals that are dedicated to changing the way we manage rare conditions. Whether it is by… Continue Reading
New York: 5th Annual Michael’s Cause Step for a Cure 5K Run and Walk
The 5th Annual Michael’s Cause Step for a Cure 5K Run and Walk will be held on Sunday, September 18th at Clove Lakes Park. We are still… Continue Reading
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2016 RARE Champion Of Hope Honorees
Over 350 individuals and organizations worldwide were nominated by their peers for a RARE Champion of Hope award for their notable efforts… Continue Reading