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Community Events

A total of 228 posts are filed under Community Events
EveryLife Foundation: 9th Annual Rare Disease Scientific Workshop
Emerging Technologies for Rare Diseases: Clinical and Regulatory Case Studies and Approval Pathways Tuesday, September 12th, 2017 8:30am –… Continue Reading
RARE Disease Fair Seattle
Westlake Park | 06/03/2017 | 11:00 am – 4:00 pm One in ten people in the United States suffer from a rare disease.  That… Continue Reading
RARE on the Road Rare Disease Leadership Tour Heads to Kansas City and Portland
Thank you to the rare disease patients and caregivers from across the southeast who recently joined the Everylife Foundation and Global… Continue Reading
The Balancing Act: Orphan Drugs Conquering Rare Disease One-By-One at Conference
The Orphan Drug Conference USA 2017 welcomed thousands of attendees as science, industry, big pharma, and patient advocacy groups met in… Continue Reading
FindaCure Workshop Agenda: A-Z To Setting Up a Patient Group’ Workshop
Findacure and Genetic Alliance UK are pleased to release the schedule for their upcoming workshop on setting up a patient group. The… Continue Reading
Michael’s Cause Has Cause for Celebration After Golf Fundraiser
The organization just had their 5th annual UFCW Local 1D/2D Golfing Tournament to raise funds for Duchenne Muscular Dystrophy research.  In… Continue Reading
Family Travels to Machu Picchu To Take On Denim Dash Challenge
Andrés Treviño and his family took Dashing to new heights in Peru at Machu Picchu for Global Genes’ Virtual Denim Dash 5k. The 5k began… Continue Reading

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Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm