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Community Events

A total of 229 posts are filed under Community Events
Family Travels to Machu Picchu To Take On Denim Dash Challenge
Andrés Treviño and his family took Dashing to new heights in Peru at Machu Picchu for Global Genes’ Virtual Denim Dash 5k. The 5k began… Continue Reading
Undiagnosed Day is April 29th! Join Us to Honor the Undiagnosed Rare Disease Community
“An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease Network UDN What… Continue Reading
Run for a Cause: Super Kids Mission Zero 5k
Organization: Super Kids:Mission Zero, Inc. Submitted by: Jessica Rohn   Super Kids: Mission Zero, Inc. is an Indianapolis, IN based… Continue Reading
Save the Date: Webinar on Guidelines on Diagnoses and Managment of Cystathionine Beta-Synthase Deficiency
Join us for an online webinar featuring Doctor Kimberly Chapman. Dr. Chapman was a member of the E-HOD Guidelines Committee and was… Continue Reading
School Rallies Around Project Alive Campaign For Kids With Rare Disease
Hundreds of students and staff from American Heritage School came together Thursday to help a young boy suffering from an incurable and… Continue Reading
Disorder: The Rare Disease Film Festival Announces its Call to Entries for their Inaugural Festival
Set to take place in Boston on October 3, 2017, the festival  encourages filmmakers whose work addresses issues of concern to rare disease… Continue Reading
Napa In Newport
Napa In Newport Raises $1 Million To Help Find a Cure for Duchenne Muscular Dystrophy
More than 400 people gathered at the Ritz-Carlton on Saturday, March 4 to enjoy the nectar of top Napa Valley wineries and help find a cure… Continue Reading

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