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A total of 93 posts are filed under Living
WSJ: The Doctors Who Solve Medical Mysteries
Wall Street Journal | Story by Sumathi Reddy at When patients have a disease that can’t be diagnosed, they get… Continue Reading
University of New Haven Football Team Signs 6-Year-Old Boy with CVID
The University of New Haven football team lost a 4-point game Saturday but did something far more important than winning or losing a… Continue Reading
Spark Therapeutics Launches Initiative to Improve Access to Genetic Testing for Inherited Retinal Diseases
Spark Therapeutics (NASDAQ: ONCE) will provide physicians and eligible patients access to genetic testing and counseling for more than 30… Continue Reading
Home Depot Employees Create Innovative Walker for Boy with Norrie Disease
All of Jessica Johnson’s doubts about her recent move from Oregon to Texas washed away the minute a few kind Home Depot employees entered… Continue Reading
The 5 Things Rare Patients Think Before Meeting a New Doctor
Ever wonder what goes through a a rare disease patient’s mind before they meet a new doctor? The worries? The fears? The hope? Here’s a… Continue Reading
RARE Revolution Online Magazines Premieres Inaugural Issue
As a community, we are only as strong as our most prominent voices—and now those voices have another forum to be heard! The release of… Continue Reading
Full Behind The Mystery Segment: The Trouble with Diagnosing a Rare Disease
Lifetime’s The Balancing Act premiered it’s newest segment of “Behind the Mystery” earlier this month with an educational story on… Continue Reading

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