November 8, 2018
Cure SMA Launches New Support Program for Teens and Adults with SMA
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March 1, 2018
The Benefits of Patient-to Patient Interactions
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November 8, 2017
The Process of Being Alive
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November 8, 2017
Respite Notebook Intended to Help Caregivers Take a Break
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October 22, 2017
Department of Education Rescinds Policy Docs on Students with Disabilities
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September 26, 2017
Understanding What Rare Disease Caregivers Face
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July 2, 2017
Rare Patient Starts Card Project for Hospitalized Kids
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January 20, 2017
RDR: Flu Season Requires Special Precautions for Rare Disease-Affected Individuals
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November 17, 2016
WSJ: The Doctors Who Solve Medical Mysteries
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October 24, 2016
University of New Haven Football Team Signs 6-Year-Old Boy with CVID
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October 18, 2016
Spark Therapeutics Launches Initiative to Improve Access to Genetic Testing for Inherited Retin...
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September 27, 2016
Home Depot Employees Create Innovative Walker for Boy with Norrie Disease
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