November 8, 2018
Cure SMA Launches New Support Program for Teens and Adults with SMA
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March 1, 2018
The Benefits of Patient-to Patient Interactions
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November 8, 2017
The Process of Being Alive
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November 8, 2017
Respite Notebook Intended to Help Caregivers Take a Break
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October 22, 2017
Department of Education Rescinds Policy Docs on Students with Disabilities
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September 26, 2017
Understanding What Rare Disease Caregivers Face
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July 2, 2017
Rare Patient Starts Card Project for Hospitalized Kids
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June 21, 2017
Rare Disease Patient and Lawyer: “I Want to Walk Again”
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June 20, 2017
Young Patient Collects Can Tabs to Raise Funds for Ronald McDonald House
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June 13, 2017
Parent Advocates: What’s Your Rare Secret?
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June 12, 2017
SCOPE on the Story of Carrie Ostrea: How a Mom Became a Rare Disease Advocate
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June 4, 2017
Educated Caregivers: A Game Changer in Rare Disease
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