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People & Organizations

A total of 187 posts are filed under People & Organizations
Children’s National Health System Launches Rare Disease Institute: 5 Things to Know
Written by Mackenzie Bean for Becker Hospital Review Washington, D.C.-based Children’s National Health System developed the Children’s… Continue Reading
Rare Diseases South Africa: Africa Leadership Award Winner
During the first week of December, Rare Diseases SA’s CEO, Kelly du Plessis, travelled to Mauritius for the Africa Leadership Awards. … Continue Reading
First 23 European Reference Networks for Rare Diseases: A Milestone for 30 Million European Patients
The European Commission today announces the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after… Continue Reading
Nominate a Lysosomal Hero For the Sanofi Genzyme TORCH Awards
We are proud to announce the first annual Sanofi Genzyme TORCH Awards! The TORCH Awards are your opportunity to recognize individuals of all… Continue Reading
Register Now For Immune Deficiency Foundation’s 2017 National Conference in Anaheim, CA
The IDF National Conference is our preeminent event, held biennially in varied and diverse locations throughout the U.S., and is a platform… Continue Reading
Realities of Rare Disease and the Role of Patient Investors
For the EBD Group, Guest post by Nicole Boice, Founder & CEO, Global Genes – Allies in Rare Disease Rare Disease represents the largest… Continue Reading
Salon V’co Hosts First Annual Voices for Rare Disease – A Smash Hit Benefiting Children
Victor Manuell and Corey Bastean, Co-owners of Lake Zurich’s , Salon V’co, wanted to give back this holiday season, so they teamed up… Continue Reading