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People & Organizations

A total of 193 posts are filed under People & Organizations
Abeona Therapeutics Inc. Rings Closing Bell at Nasdaq on World Rare Disease Day
Congratulations to our friends at Abeona Therapeutics Inc. (ABEO), a leading clinical-stage biopharmaceutical company focused on developing… Continue Reading
The Balancing Act’s Ongoing “Behind the Mystery: Rare and Genetic Diseases” Series Features Rare Disease Day Episode on February 28th
One in every ten Americans has a rare disease.  It’s a startling statistic, but it’s one that will help even the healthiest of… Continue Reading
Montrae Holland: Living Life to the Fullest Despite Your Condition
“Blount’s Disease opened all my doors to actually living. It gave me a different perspective in life. I felt if I can overcome this… Continue Reading
Cambridge BioMarketing Campaign Raises Awareness for Rare Disease Research
Cambridge BioMarketing, the world’s leading rare disease and specialty communications agency, announced its #SupportTheSearch social media… Continue Reading
Beautiful Portrait of Child with Bohring-Opitz Syndrome Featured in Beyond the Diagnosis Exhibit
One Sunday morning, Chad and I came across the Sunday Morning Show. They were showing a portrait of a child with a Rare Disease. It was… Continue Reading
Michael’s Cause 6th Annual Evening of Hope Dinner Dance
The 6th annual Michael’s Cause Evening of Hope Dinner Dance will be held on April 1, 2017 at the Hilton Garden Inn Staten Island, NY.… Continue Reading
Children’s National Health System Launches Rare Disease Institute: 5 Things to Know
Written by Mackenzie Bean for Becker Hospital Review Washington, D.C.-based Children’s National Health System developed the Children’s… Continue Reading