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People & Organizations

A total of 183 posts are filed under People & Organizations
Register Now For Immune Deficiency Foundation’s 2017 National Conference in Anaheim, CA
The IDF National Conference is our preeminent event, held biennially in varied and diverse locations throughout the U.S., and is a platform… Continue Reading
Realities of Rare Disease and the Role of Patient Investors
For the EBD Group, Guest post by Nicole Boice, Founder & CEO, Global Genes – Allies in Rare Disease Rare Disease represents the largest… Continue Reading
Salon V’co Hosts First Annual Voices for Rare Disease – A Smash Hit Benefiting Children
Victor Manuell and Corey Bastean, Co-owners of Lake Zurich’s , Salon V’co, wanted to give back this holiday season, so they teamed up… Continue Reading
A Conference of Hope: One Attendee’s Global Genes Summit Experience
By Brenda Conger This year’s Global Genes Summit in California was a two- day event partnering with rare disease patients, caregivers,… Continue Reading
The Chive: From the Sidelines to the Spotlight
Imagine never knowing the sensation of tickled feet, never dipping your toes in a running stream, never feeling the sand between your toes.… Continue Reading
Of Mice and Men Frontman Austin Carlile Shares Devastating Message as He Faces Life-Threatening Illness
Metalcore titans Of Mice and Men were forced to cut their European tour short in October when frontman Austin Carlile was hospitalized for… Continue Reading
CureDuchenne Aims for a Treatment for the 87%
The First Pharmaceutical Treatment Approved for Duchenne Muscular Dystrophy Will Treat 13% of Those Affected, CureDuchenne Redoubles Efforts… Continue Reading

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