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People & Organizations

A total of 196 posts are filed under People & Organizations
John_Walsh_Alpha_1
Honoring John W. Walsh’s Alpha-1 Legacy
John W. Walsh, whose vision of a research foundation and a patient services organization for people with Alpha–1 Antitrypsin Deficiency… Continue Reading
Dan_Reynolds_Imagine_dragons
A Rockstar, Big Pharma, And an Advocacy Group Unite!
Missing out on important life events is par for the course in many chronic illnesses. Patients are sometimes forced to bail on family and… Continue Reading
Illumina Announces the iHope Network, an Expansion of Its iHope Philanthropic Clinical Whole Genome Sequencing Program
Illumina, Inc. (NASDAQ:ILMN) today announced the launch of the iHope Network, a consortium of member institutions who have committed to… Continue Reading
Abeona Therapeutics Inc. Rings Closing Bell at Nasdaq on World Rare Disease Day
Congratulations to our friends at Abeona Therapeutics Inc. (ABEO), a leading clinical-stage biopharmaceutical company focused on developing… Continue Reading
The Balancing Act’s Ongoing “Behind the Mystery: Rare and Genetic Diseases” Series Features Rare Disease Day Episode on February 28th
One in every ten Americans has a rare disease.  It’s a startling statistic, but it’s one that will help even the healthiest of… Continue Reading
Montrae Holland: Living Life to the Fullest Despite Your Condition
“Blount’s Disease opened all my doors to actually living. It gave me a different perspective in life. I felt if I can overcome this… Continue Reading
Cambridge BioMarketing Campaign Raises Awareness for Rare Disease Research
Cambridge BioMarketing, the world’s leading rare disease and specialty communications agency, announced its #SupportTheSearch social media… Continue Reading
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