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Rare Disease

A total of 21 posts are filed under Rare Disease
Researchers Declare Breakthrough in Rare Brain Disease in Kids
Rare Daily Staff Researchers from Université de Montréal and the CHU Sainte-Justine and Université de Montréal Hospital say they have… Continue Reading
Why Rare Disease Research Matters
Every year, there are so many different projects at fairs surrounding high profile diseases, such as various types of cancer, Alzheimer’s,… Continue Reading
Researchers Develop Blood and Urine Test for Autism Spectrum Disorders
Rare Daily Staff Researchers at the University of Warwick and elsewhere say they have developed what they believe is a first-of-its-kind… Continue Reading
Solid Biosciences IPO Raises $133.7 Million, but Former Scientific Advisory Board Member Raises Safety Concerns
Rare Daily Staff Solid Biosciences said it closed its initial public offering of more than 8.9 million shares of common stock at $16 per… Continue Reading
Notre Dame Center Leverages Commonalities of Rare and Neglected Diseases
    The Boler-Parseghian Center for Rare and Neglected Diseases at Notre Dame University conducts both basic and translational research.… Continue Reading
NORD Awards Five New Grants for Rare Disease Research
Rare Daily Staff The National Organization for Rare Disorders said it made five awards through its 2017 Rare Disease Research Grant Program.… Continue Reading
Why Rare Disease Groups Should Do More to Address Psychosocial Issues
A new study from researchers at Oregon State University finds people with rare conditions are a greater risk for health-related quality of… Continue Reading