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Rare Disease

A total of 49 posts are filed under Rare Disease
Registry Hopes to Shed Light on Rare Disorders of Genetic Obesity
For anyone living in the land of the Big Gulp, stuffed crust pizza, and the Cinnabon Caramel Pecanbon, it may be hard to imagine that… Continue Reading
CDC Expresses Concern about Emerging Cases of Rare, Paralyzing Disease
Rare Daily Staff The U.S. Centers for Disease Control and Prevention said since August of 2014, it has seen an increase in the number of… Continue Reading
Giving New Meaning to “Translational Research”
For rare disease advocates, getting access to the latest medical research can be daunting. The high price tag makes paying for access to… Continue Reading
Amicus Forms R&D Collaboration with Penn Focused on AAV Gene Therapies
Rare Daily Staff Amicus Therapeutics said it entered into a collaboration with the Gene Therapy Program in the Perelman School of… Continue Reading
An Elite Runner Makes a Cross-Canada Trek for His Son and Rare Disease
This summer, elite runner Dave Proctor set out on a 4,500-mile run across Canada to break a Guinness World Record and raise $1 million to… Continue Reading
Discovery Could Lead to Better Diagnosis and Treatment of Lupus in African Patients
Rare Daily Staff Black Africans have a higher level of Lupus than previous known and identified an antibody previously unlinked to the… Continue Reading
How Rare Disease Advocates Can Get the Most out of Collaborations
Collaborations play a critical role in advancing potential treatments for a rare disease and can take many forms. In some cases, they may… Continue Reading
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