Connecting the Global Rare Disease Community
In the 40 years since the Orphan Drug Act was legislated in the USA, there is a growing understanding of the importance of rare diseases that affect over 30 million Americans. While the situation in Europe is similar, no such awareness exists in many parts of the world such as India which is home to over a quarter of the world’s population. It is time to change that, for the 1.5 billion people in India, and the 8 billion people across the world.
The Bridging RARE Summit 2023 brings together key leaders representing all stakeholders of rare diseases from across the world with a specific focus on the US, and the Indian subcontinent.