Community Events

Rare & Resilient Resources Webinar Series: A New Perspective on Coping with Pruritus in PFIC

February 16, 2023 - March 9, 2023

Register now

Our Rare Disease Month theme of February 2023 is a pertinent issue facing  rare disease patients and families: Mental Wellbeing.

We are hosting a special five-part webinar series starting on February 16 and running through March 9, titled “A New Perspective on Coping with Pruritus in PFIC.” The host is Caitlin Shneider, a Clinical Psychology Doctoral student at Georgia State University. Caitlin examined the influence of child pain catastrophizing and parent response to pain on psychosocial and functional outcomes for youth, giving her a unique perspective on dealing with Pruritus.

During these webinars, our parent/patient community will learn:

  •  The role of stress in pruritus
  •  Tips for managing stress
  •  Interventions for chronic itch
  •  Tips on how to find a therapist

We will be hosting one webinar a week through March 10. The webinars will be live with a Q&A session, but also recorded and added to our website with a session recap. The link to the webpage is here: