The Aarskog Foundation
The Aarskog Foundation is a Charitable, non profit, global alliance. We are a world leading patient and family organisation for people living with Aarskog Syndrome (AS) across 35 countries. We bring together patients, girls, women children and families facing common challenges derived from the uniqueness of our RARE Genetic condition.
As members of the rare genetic community we are the first Foundation in the world to engage in patient pathway partnerships for and on behalf of Aarskog families.Disease Support Organization Last Updated: 29 Oct 2021
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020
The Aarskog Syndrome Parents Support Group
The Aarskog Syndrome Parents Support Group’s mission is to supply all persons affected with Aarskog syndrome with information and support via e-mail or regular mail delivery.Disease Support Organization Last Updated: 10 Dec 2018