Acromelic frontonasal dysplasia

Support Type
Support Services
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020
  • Children’s Craniofacial Association

    Empowering and giving hope to individuals and families affected by facial differences.

    Disease Support Organization Last Updated: 30 Jan 2019
  • FACES, The National Craniofacial Association

    The National Craniofacial Association is a nonprofit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries or disease.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Craniofacial Foundation of America

    The Craniofacial Foundation of America (CFA) is a nonprofit organization that supports the work of the Tennessee Craniofacial Center at Children’s Hospital and Erlanger Health System in Chattanooga, Tennessee. The CFA is dedicated to providing support for individuals with facial disfigurement from birth defects, tumors and trauma.

    Disease Support Organization Last Updated: 30 Jan 2019
  • World Craniofacial Foundation

    The mission of the World Craniofacial Foundation is to provide help, hope, and healing for children with craniofacial abnormalities and their families.

    Disease Support Organization Last Updated: 30 Jan 2019

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