Acute Disseminated Encephalomyelitis

Support Type
Support Services
  • Siegel Rare Neuroimmune Association

    Our Mission is-
    -To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system
    -To promote awareness and to empower patients, families, clinicians and scientists through education programs and publications
    -To advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research.
    OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH THESE RARE NEUROIMMUNE DISORDERS

    Disease Support Organization Last Updated: 22 Apr 2020
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020
  • The Transverse Myelitis Association

    Our Mission is-
    -To support and advocate for individuals and their families diagnosed with rare neuro-immunologic disorders of the central nervous system
    -To promote awareness and to empower patients, families, clinicians and scientists through education programs and publications
    -To advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research.
    OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH THESE RARE NEURO-IMMUNOLOGIC DISORDERS

    Disease Support Organization Last Updated: 30 Jan 2019
  • Pediatric Brain Foundation

    Pediatric Brain Foundation’s Mission is Three-fold:
    1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder

    2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology

    3. Educate the public and public officials on the critical importance of funding pediatric neurological research

    Disease Support Organization Last Updated: 13 Nov 2018

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