Adenylosuccinase Deficiency
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Simons Searchlight
Simons Searchlight is a partnership of leading scientists, doctors and families on a mission. We are a non-profit, online community that studies over 100 genes that are associated with autism and other neurodevelopmental disorders. You or your family member needs a genetically confirmed diagnosis of one of these genetic conditions to join.
We invite you to check our website and encourage you to register today! Please contact us at 1-855-329-5638 or [email protected] for more information.
Disease Support Organization Last Updated: 11 Mar 2020 -
Foundation for Women & Girls with Blood Disorders
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
FWGBD:
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020