Adrenomyeloneuropathy

Support Type
Support Services
  • The Stennis Foundation

    Raising awareness of the Leukodystrophies, and raising funds for Leukodystrophies research.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Fight ALD

    Our mission is to save the lives of our boys by bringing about awareness through education–to our community and medical professionals–about the early onset symptoms of X-ALD (Adrenoleukodystrophy), the simple diagnostic blood test, and treatments.
    We also have information about the adult onset, AMN (Adrenomyeloneuropathy).
    Our current goal is to get ALD newborn screening added to the Recommended Uniform Screening Panel (RUSP) to allow for early diagnosis and life saving interventive treatment for all at risk babies in the US.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Alex TLC

    Alex TLC is a trusted and experienced organization offering support and information for all those affected by a genetic leukodystrophy. Formerly ALD Life, an internationally recognized center of excellence for people affected by adrenoleukodystrophy and adrenomyeloneuropathy, the charity was established in 2004.

    Disease Support Organization Last Updated: 30 Jan 2019
  • The Myelin Project

    We are an international 501(c)(3) non-profit organization funding medical research and raising awareness for rare brain diseases.

    Disease Support Organization Last Updated: 30 Jan 2019
  • National Adrenal Diseases Foundation (NADF)

    The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.

    Disease Support Organization Last Updated: 13 Nov 2018

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