Adult Opsoclonus Myoclonus Syndrome

Support Type
Support Services
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020
  • Opsoclonus Myoclonus Support Network, Inc.

    The Opsoclonus Myoclonus Support Network recognizes the immediate need of Opsoclonus Myoclonus patients and their families to network with others affected by the syndrome, to have access to comprehensive information relating to the syndrome, and to be informed of the latest research, and recognizes the immediate need to have medical professionals better informed about the syndrome, its symptoms, history, etiology, and treatments. The Opsoclonus Myoclonus Support Network believes the syndrome’s causes are discernible, and therefore advocates and supports research investigating the syndrome’s neuro-biological and biochemical basis.
    Any person affected by the syndrome is considered a community member.

    Disease Support Organization Last Updated: 30 Jan 2019

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