Our vision is a world in which young adults and children are not limited by their liver disease; ensuring that babies, children, young people, their families achieve their full potential.
Children’s Liver Disease Foundation does this by:
Funding vital research
Educating healthcare professionals, parents and the public on the signs and symptoms
Campaigning to give young people and their families one strong voice
Providing tailored support to young adults, children (aged 0-25) and their familiesDisease Support Organization Last Updated: 31 Mar 2020
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020
The purpose of the Alliance is to be the main networking resource and source of information for people with ALGS, their families, friends, and health care providers. The Alliance is also dedicated to increasing public awareness of ALGS and supporting research efforts on behalf of the ALGS community.Disease Support Organization Last Updated: 30 Jan 2019