Albinism
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Foundation for Women & Girls with Blood Disorders
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
FWGBD:
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020 -
National Organization for Albinism and Hypopigmentation (NOAH)
We provide information and support regarding albinism, promote public/professional education, facilitate networking and encourage research/funding that will lead to improved diagnosis/management.
Disease Support Organization Last Updated: 30 Jan 2019 -
Albinism Fellowship
1 Provide appropriate advice that enables people with albinism, or other interested parties, to acquire an accurate appreciation of the condition.
2 Raise positive awareness of albinism and when possible challenge events where the condition is misrepresented or portrayed incorrectly.
3 Provide appropriate support when necessary which enables people with albinism to improve their self-esteem.
Disease Support Organization Last Updated: 30 Jan 2019