The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020
We provide information and support regarding albinism, promote public/professional education, facilitate networking and encourage research/funding that will lead to improved diagnosis/management.Disease Support Organization Last Updated: 30 Jan 2019
1 Provide appropriate advice that enables people with albinism, or other interested parties, to acquire an accurate appreciation of the condition.
2 Raise positive awareness of albinism and when possible challenge events where the condition is misrepresented or portrayed incorrectly.
3 Provide appropriate support when necessary which enables people with albinism to improve their self-esteem.Disease Support Organization Last Updated: 30 Jan 2019