Alpers Syndrome
-
Foundation for Women & Girls with Blood Disorders
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
FWGBD:
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020 -
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation strives to promote research and education for the diagnosis, treatment and cures of mitochondrial disorders and to provide support to affected individuals and families.
Disease Support Organization Last Updated: 30 Jan 2019 -
Pediatric Brain Foundation
Pediatric Brain Foundation’s Mission is Three-fold:
1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology
3. Educate the public and public officials on the critical importance of funding pediatric neurological research
Disease Support Organization Last Updated: 13 Nov 2018