Our vision is a world in which young adults and children are not limited by their liver disease; ensuring that babies, children, young people, their families achieve their full potential.
Children’s Liver Disease Foundation does this by:
Funding vital research
Educating healthcare professionals, parents and the public on the signs and symptoms
Campaigning to give young people and their families one strong voice
Providing tailored support to young adults, children (aged 0-25) and their familiesDisease Support Organization Last Updated: 31 Mar 2020
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020
AlphaNet has a mission. The heart of this mission is simple — to improve the lives of individuals affected by Alpha-1 Antitrypsin Deficiency. As a not-for-profit organization that is governed by, employs and serves Alphas, AlphaNet is uniquely able to develop and offer programs and services based on a very personal understanding of how Alpha-1 affects the lives of Alphas. In keeping with this mission, AlphaNet provides a wide range of specialized programs and services designed to meet the specific needs of the Alphas it serves.Disease Support Organization Last Updated: 30 Jan 2019
The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.Disease Support Organization Last Updated: 30 Jan 2019
To provide support and education for patients, families, carers and friends who are affected directly or indirectly by Alpha-1 Antitrypsin Deficiency.
To grow a social network for patients, by providing discussion groups focusing on how better to cope with their condition, aiming towards improving quality of life.
To advance education and understanding of the condition, in particular among medical professionals, including information relating to genetic implications, treatment, and lifestyle choices.
To campaign for better access to treatment for Alpha-1 patients.Disease Support Organization Last Updated: 30 Jan 2019