Angelman syndrome
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Foundation for Angelman Syndrome Therapeutics (FAST)
FAST is run by an all-volunteer board of Angelman syndrome (AS) parents and professionals dedicated to finding a cure for AS and related disorders through the funding of an aggressive research agenda. The foundation is committed to assisting individuals living with Angelman syndrome to realize their full potential and quality of life. Our goal is to bring practical treatment into current medical practice as quickly as possible.
Disease Support Organization Last Updated: 27 Jul 2021 -
Foundation for Women & Girls with Blood Disorders
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
FWGBD:
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020 -
Angelman Syndrome Foundation
The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman Syndrome through education, information, support, advocacy and research.
Disease Support Organization Last Updated: 30 Jan 2019 -
Pediatric Brain Foundation
Pediatric Brain Foundation’s Mission is Three-fold:
1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology
3. Educate the public and public officials on the critical importance of funding pediatric neurological research
Disease Support Organization Last Updated: 13 Nov 2018