Anophthalmia
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Birth Defect Research for Children, Inc.
Birth Defect Research for Children provides free information about birth defects and developmental disabilities. We also sponsor a parent matching program and the National Birth Defect Registry, a research project that collects data for studies on causes of birth defects.
Disease Support Organization Last Updated: 5 Sep 2021 -
Foundation for Women & Girls with Blood Disorders
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
FWGBD:
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020 -
International Children’s Anophthalmia Network
The International Children’s Anophthalmia & Micropthalmia Network (ican), a voluntary not-for-profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anophthalmia (eyes that are abnormally small, completely absent, or consist only of vestigial portions).
Disease Support Organization Last Updated: 30 Jan 2019