Support Type
Support Services
  • APBD Research Foundation

    We are dedicated to finding a cure for APBD while improving the lives of those affected

    Disease Support Organization Last Updated: 18 Jan 2021
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020
  • United Leukodystrophy Foundation, Inc.

    The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention.

    Disease Support Organization Last Updated: 30 Jan 2019

Connect. Empower. Inspire.