Apert Syndrome

Support Type
Support Services
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020
  • Apert Syndrome Pen Pals

    To provide guidance and support for individuals with Apert Syndrome.

    Disease Support Organization Last Updated: 30 Jan 2019
  • FACES, The National Craniofacial Association

    The National Craniofacial Association is a nonprofit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries or disease.

    Disease Support Organization Last Updated: 30 Jan 2019
  • World Craniofacial Foundation

    The mission of the World Craniofacial Foundation is to provide help, hope, and healing for children with craniofacial abnormalities and their families.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Craniosynostosis and Positional Plagiocephaly Support Inc

    Our mission is to spread awareness, educate and offer support and guidance to families affected by Craniosynostosis and/or Positional Plagiocephaly as well as any craniofacial concern affecting the skull.

    Disease Support Organization Last Updated: 30 Jan 2019

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