Apert Syndrome

Support Type
Support Services
  • Apert Syndrome Pen Pals

    To provide guidance and support for individuals with Apert Syndrome.

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 1994 501(c)3 Nonprofit: No Medical Advisory Board: No
  • World Craniofacial Foundation

    The mission of the World Craniofacial Foundation is to provide help, hope, and healing for children with craniofacial abnormalities and

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 1989 501(c)3 Nonprofit: No Medical Advisory Board: Yes
  • Craniosynostosis and Positional Plagiocephaly Support Inc

    Our mission is to spread awareness, educate and offer support and guidance to families affected by Craniosynostosis and/or Positional Plagiocephaly

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 1999 501(c)3 Nonprofit: Yes Medical Advisory Board: No
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down

    General Support Organization Last Updated: 13 Nov 2018
    Established: 1979 501(c)3 Nonprofit: No Medical Advisory Board: Yes
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance,

    General Support Organization Last Updated: 13 Nov 2018
    Established: 2009 501(c)3 Nonprofit: Yes Medical Advisory Board: No

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