Apert Syndrome

Support Type
Support Services
  • Apert Syndrome Pen Pals

    To provide guidance and support for individuals with Apert Syndrome.

    Disease Support Organization Last Updated: 30 Jan 2019
  • World Craniofacial Foundation

    The mission of the World Craniofacial Foundation is to provide help, hope, and healing for children with craniofacial abnormalities and their families.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Craniosynostosis and Positional Plagiocephaly Support Inc

    Our mission is to spread awareness, educate and offer support and guidance to families affected by Craniosynostosis and/or Positional Plagiocephaly as well as any craniofacial concern affecting the skull.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

    General Support Organization Last Updated: 13 Nov 2018
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

    General Support Organization Last Updated: 13 Nov 2018

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