Support Type
Support Services
  • Care4ASH1L

    Care4ASH1L has been founded with the agenda to engage with researchers & scientists globally and improve the research projects on ASH1L gene mutation, raise awareness, improve community capacity, establish a trustworthy platform to encourage ASH1L families to communicate with each other and expedite the research on ASH1L to develop therapeutic interventions in order to ameliorate the lives of ASH1L families.

    Disease Support Organization Last Updated: 27 Feb 2021
  • Simons Searchlight

    Simons Searchlight is a partnership of leading scientists, doctors and families on a mission. We are a non-profit, online community that studies over 100 genes that are associated with autism and other neurodevelopmental disorders. You or your family member needs a genetically confirmed diagnosis of one of these genetic conditions to join.

    We invite you to check our website and encourage you to register today! Please contact us at 1-855-329-5638 or [email protected] for more information.

    Disease Support Organization Last Updated: 11 Mar 2020
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020

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