Thank you for visiting the RARE List. We recognize how critical accurate information is, and our team is working diligently to bring you a new, complete and accurate RARE List in the coming months. We apologize for this inconvenience. Should you need anything in the meantime, please contact the RARE Concierge Patient Services team.



A very rare glial neoplasm of the central nervous system most often with an intra-axial peripheral supratentorial location in one hemisphere of the frontal or parietal lobes and usually presenting in infants and young adults with symptoms of vomiting loss of consciousness epileptic seizures and headaches.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version June 2022.

Connect. Empower. Inspire.