Autosomal dominant intellectual disability-6
Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness.Disease Support Organization Last Updated: 12 Mar 2020
Simons Searchlight is a partnership of leading scientists, doctors and families on a mission. We are a non-profit, online community that studies over 100 genes that are associated with autism and other neurodevelopmental disorders. You or your family member needs a genetically confirmed diagnosis of one of these genetic conditions to join.
We invite you to check our website and encourage you to register today! Please contact us at 1-855-329-5638 or [email protected] for more information.Disease Support Organization Last Updated: 11 Mar 2020
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020