Support Type
Support Services
  • CADASIL Association

    The mission of the CADASIL Association is to raise awareness of CADASIL, ensuring it will be universally recognized and understood

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 2012 501(c)3 Nonprofit: No Medical Advisory Board: Yes
  • CADASIL Together We Have Hope

    CADASIL Together We Have Hope is devoted to promoting awareness, education, support, and research for CADASIL patients, families, friends, and

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 2005 501(c)3 Nonprofit: Yes Medical Advisory Board: Yes
  • The Stennis Foundation

    Raising awareness of the Leukodystrophies, and raising funds for Leukodystrophies research.

    Disease Support Organization Last Updated: 30 Jan 2019
    Established: 2002 501(c)3 Nonprofit: Yes Medical Advisory Board: No
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down

    General Support Organization Last Updated: 13 Nov 2018
    Established: 1979 501(c)3 Nonprofit: No Medical Advisory Board: Yes
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance,

    General Support Organization Last Updated: 13 Nov 2018
    Established: 2009 501(c)3 Nonprofit: Yes Medical Advisory Board: No

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