Canavan Disease

Support Type
Support Services
  • Canavan Research Illinois

    Canavan Research Illinois (also known as Canavan Disease Research) is a nonprofit corporation and 501(c)(3) public charity based in Illinois, established in April 2000 to meet a critical need to support medical research to treat, cure, and improve the quality of lives of all children battling Canavan disease, a rare fatal genetic neurological disorder. We further increase public awareness and network Canavan families.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Canavan Research Foundation

    The Canavan Research Foundation is dedicated to eradicating neurodegenerative brain disease. Our research culminated in the world’s first gene therapy for a brain disease in 1996, which spurred myelin growth in the brain of its young recipients. In the past few months, there has been a major breakthrough- through stem cell and metabolic treatment, the research team has found a cure to Canavan Disease, which will lead to a cure for Alzheimer’s and other degenerative diseases. But funding is direly needed- your help has never been so important.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Canavan Foundation, Inc.

    The Foundation’s mission is twofold: to help prevent Canavan disease and other Jewish genetic diseases through education about the availability of carrier screening; and to support research efforts to find effective therapies and a cure.

    Disease Support Organization Last Updated: 30 Jan 2019
  • The Stennis Foundation

    Raising awareness of the Leukodystrophies, and raising funds for Leukodystrophies research.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Center for Jewish Genetics

    The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders and hereditary cancers. Its mission is to educate and serve health care professionals, clergy and the Jewish community.

    Disease Support Organization Last Updated: 30 Jan 2019

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