Ceroid Lipofuscinosis Neuronal 4A Autosomal Recessive

Support Type
Support Services
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    FWGBD:
    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020
  • Batten Disease Support and Research Association

    Our mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as Batten disease.

    Disease Support Organization Last Updated: 30 Jan 2019

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