Cystinuria

Support Type
Support Services
  • International Cystinuria Foundation Incorporated

    The Mission of the International Cystinuria Foundation is to strengthen, educate, and further the general well being of the cystinuric community.

    We aim to support a growing and strong group of patients, families, professionals, and friends by providing educational and health related resources to affected individuals worldwide. We also aim to promote knowledge of cystinuria within the research and medical communities in order to reduce kidney destruction, renal impairment, and subsequent health, vocational, and economic impact.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Cystinuria Support Network

    Cystinuria Support Network is a non-profit organisation offering support to persons with cystinuria and their families, friends and caregivers.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

    General Support Organization Last Updated: 13 Nov 2018
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

    General Support Organization Last Updated: 13 Nov 2018
  • Any Baby Can, Inc.

    Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

    General Support Organization Last Updated: 13 Nov 2018

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