Desmoid Tumor


Type of disease: Rare conditions

Desmoid tumors are benign (noncancerous) growths of the connective tissue. Although these tumors rarely spread to more distant parts of the body, they have a tendency to invade surrounding tissues and can be very difficult to remove. Signs and symptoms vary from person to person and largely depend on the size and location of the tumor; however, many affected people experience pain, numbness, and/or tingling. The cause of desmoid tumors is unknown, but they sometimes occur in people with certain conditions such as familial adenomatous polyposis (FAP). Treatment consists of surgery to remove as much of the tumor as possible. Radiation therapy, chemotherapy, and/or hormone therapy may also be used in some cases.Source: Genetic and Rare Diseases Information Center (GARD), supported by ORDR-NCATS and NHGRI.

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