Diabetes mellitus AND insipidus with optic atrophy AND deafness

Support Type
Support Services
  • Wolfram Syndrome UK

    Wolfram Syndrome UK is a patient orientated organisation; who take pride in helping to offer high quality support services, facilitating access to the WS specialist clinics operated by NHS England. During these clinics those affected and their families can be seen by medical experts to help maintain a good quality of life and receive the most up to date treatments and advice, which is then shared back to a patient’s local care team.

    At the very heart of our charity’s soul is a driving force, a passion and vision to improve the lives of those with Wolfram Syndrome.

    Disease Support Organization Last Updated: 16 Sep 2021
  • Foundation for Women & Girls with Blood Disorders

    The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.

    Raises awareness and educates key healthcare professionals
    Translates and disseminates information and research
    Nurtures future healthcare leaders
    Fosters collaboration and generates knowledge among core disciplines

    Disease Support Organization Last Updated: 11 Mar 2020

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