Fragile X Syndrome

Support Type
Support Services
  • VOR-Speaking up for people with intellectual & developmental disabilities

    VOR is a national organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities.

    Disease Support Organization Last Updated: 30 Jan 2019
  • FRAXA Research Foundation

    Our mission is to support research aimed at finding specific treatments and a cure for Fragile X syndrome, the leading inherited cause of mental impairment.

    Disease Support Organization Last Updated: 30 Jan 2019
  • The Arc of East Central Iowa

    The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

    Disease Support Organization Last Updated: 30 Jan 2019
  • The Fragile X Society

    To improve the quality of life of all those affected by fragile X syndrome by providing mutual support to fragile X families from those who share and understand their concerns and needs.
    To provide information to fragile X families about fragile X syndrome and the medical, social, educational and other services available to their children and relatives who are affected by fragile X.
    To educate and inform the public and professional people about the prevalence and nature of fragile X syndrome in order to raise awareness and understanding of the syndrome and improve the care of all individuals affected by fragile X.
    To encourage research into all aspects of fragile X through the participation of our family members in fragile X studies and to publicise the results.

    Disease Support Organization Last Updated: 30 Jan 2019
  • National Fragile X Foundation

    The National Fragile X Foundation unites the Fragile X community to enrich lives through educational & emotional support, promote public & professional awareness, & advance research toward treatments & a cure for Fragile X.

    Disease Support Organization Last Updated: 30 Jan 2019

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