Hailey Hailey Disease
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020
Our primary mission is the dissemination of free, correct and useful information and support for HHD patients and the health care community. We support an informational website and forum and manage the Yahoo Group, TalkHHD.Disease Support Organization Last Updated: 30 Jan 2019