Hemimegalencephaly

Support Type
Support Services
  • Hemispherectomy Foundation

    To Encourage and Support impacted families by connecting them with other families who have had a hemispherectomy or similar surgery

    To Work together with medical professionals to fund research into the cause of the diseases that lead to intractable epilepsy, hemispherectomy, and the surgery itself

    To Raise Money for camp fees, scholarships for trade schools and higher education as well as provide financial relief for struggling families

    Disease Support Organization Last Updated: 30 Jan 2019
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

    General Support Organization Last Updated: 13 Nov 2018
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

    General Support Organization Last Updated: 13 Nov 2018
  • Any Baby Can, Inc.

    Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

    General Support Organization Last Updated: 13 Nov 2018
  • The Compassionate Friends

    When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family.

    General Support Organization Last Updated: 13 Nov 2018

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