Hemolytic uremic syndrome, atypical
aHUS Alliance Global Action is focused on three main objectives, which are to:
• promote global awareness of aHUS,
• work with international aHUS researchers,
• and support newly emerging national aHUS patient groups.
Together with patient groups and atypical HUS advocates in over 30 nations, our aHUS Alliance Global Action platform and initiatives serve among stakeholders to CONNECT, INFORM, COLLABORATE.
aHUS Alliance Global Action is registered as a charitable incorporated organization (Reg No. 1167904, UK Charity Commissions, operating in USA UK IN)Disease Support Organization Last Updated: 10 Jun 2020
The Foundation for Women & Girls with Blood Disorders works to ensure all women and girls with blood disorders are correctly diagnosed and optimally managed at every life stage.
Raises awareness and educates key healthcare professionals
Translates and disseminates information and research
Nurtures future healthcare leaders
Fosters collaboration and generates knowledge among core disciplinesDisease Support Organization Last Updated: 11 Mar 2020
The Foundation for Children with Atypical HUS is a not-for-profit 501 (c)(3) organization that provides information to those affected by this rare disease, offers support for patients and families, collaborates with national and international rare disease organizations, offers aHUS meetings, and raises funds for research. The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder.Disease Support Organization Last Updated: 30 Jan 2019