Hermansky-Pudlak syndrome 7

Support Type
Support Services
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down

    General Support Organization Last Updated: 13 Nov 2018
    Established: 1979 501(c)3 Nonprofit: No Medical Advisory Board: Yes
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance,

    General Support Organization Last Updated: 13 Nov 2018
    Established: 2009 501(c)3 Nonprofit: Yes Medical Advisory Board: No
  • Any Baby Can, Inc.

    Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay

    General Support Organization Last Updated: 13 Nov 2018
    Established: 1982 501(c)3 Nonprofit: Yes Medical Advisory Board: Yes
  • The Compassionate Friends

    When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate

    General Support Organization Last Updated: 13 Nov 2018
    Established: 1972 501(c)3 Nonprofit: Yes Medical Advisory Board: No
  • Family Resource Center on Disabilities

    To improve services for all children with disabilities.

    General Support Organization Last Updated: 13 Nov 2018
    Established: 1969 501(c)3 Nonprofit: No Medical Advisory Board: No

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