Support Type
Support Services
  • Missouri Family to Family

    Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Hydrocephalus Association

    The Hydrocephalus Association’s goal is to eliminate the challenges of hydrocephalus by stimulating innovative research and providing support, education and advocacy for individuals, families and professionals dealing with the complex issues of the condition.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Spina Bifida Resource

    Spina Bifida Resource’s mission is to promote the prevention of spina bifida and its secondary conditions and to enhance the health and well-being of those affected.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Chiari & Syringomyelia Foundation

    Our mission is to advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related CSF (cerebrospinal fluid) disorders.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Pediatric Brain Foundation

    Pediatric Brain Foundation’s Mission is Three-fold:
    1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder

    2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology

    3. Educate the public and public officials on the critical importance of funding pediatric neurological research

    Disease Support Organization Last Updated: 13 Nov 2018

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