Ichthyosis

Support Type
Support Services
  • Caring Voice Coalition,Inc,

    Caring Voice Coalition empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, our knowledgeable, caring staff maintains our solid reputation as a dependable, responsive organization with a unique, holistic approach to improving the lives of our patients.

    General Support Organization Last Updated: 13 Nov 2018
  • Rhode Island Rare Disease Foundation

    The mission of the Rhode Island Rare Disease Foundation is to benefit Rhode Islanders living with a rare disease and their families by: providing information and support, raising awareness, advocating, and educating both the medical community and the general public.

    General Support Organization Last Updated: 13 Nov 2018
  • Erfocentrum

    Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of genetics and biomedical issues.

    General Support Organization Last Updated: 13 Nov 2018
  • Genetic Alliance Australia

    Genetic Alliance Australia (GA-AU) is an umbrella group, facilitating support for those affected directly or indirectly by rare diseases (80% of which are genetic in origin) throughout Australasia. We offer peer support, education and information through our seminars, annual information days and resource booklets. GA-AU has a database of over 950 predominantly rare genetic conditions and a contact register representing approximately 2500 people. GA-AU works in partnership with sister organisations around the world.

    General Support Organization Last Updated: 13 Nov 2018
  • About Special Kids

    We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.

    General Support Organization Last Updated: 13 Nov 2018

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