Jansen type metaphyseal chondrodysplasia

Support Type
Support Services
  • Little People of America, Inc.

    Little People of America, Inc. (LPA), will assist dwarfs with their physical and developmental concerns resulting from short stature. By providing medical, environmental, educational, vocational, and parental guidance, short-statured individuals and their families may enhance their lives and lifestyles with minimal limitations. Through peer support and personal example, our members will be supportive of all those who reach out to LPA. Lastly, by networking with national and international growth-related and genetic-support groups, LPA will enhance knowledge and support of short-statured individuals.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Human Growth Foundation

    The Human Growth Foundation helps children and adults with disorders related to growth or growth-hormone through education, research, support and advocacy.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Craniofacial Foundation of America

    The Craniofacial Foundation of America (CFA) is a nonprofit organization that supports the work of the Tennessee Craniofacial Center at Children’s Hospital and Erlanger Health System in Chattanooga, Tennessee. The CFA is dedicated to providing support for individuals with facial disfigurement from birth defects, tumors and trauma.

    Disease Support Organization Last Updated: 30 Jan 2019
  • Contact a Family

    Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

    General Support Organization Last Updated: 13 Nov 2018
  • Advocacy for Patients with Chronic Illness, Inc.

    To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

    General Support Organization Last Updated: 13 Nov 2018

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